We're home!!!

We are finally home! We got to come home on Thursday and we couldn't be happier. It was a bitter sweet day when they said we were able to come home. We were so excited but scared to death. They sent Crue home without a shunt which made us really nervous. We were told to watch for signs of him needing one. The signs we need to watch for are if he is inconsolably crying or not eating, or excessively throwing up. We also need to keep an eye on his soft spot, if it becomes hard or bulges out we need to take him in immediately. This is what made us so nervous...we were told that he will need a shunt soon, but as of right now he seems to be doing fine. The fluid in his ventricles is on the high side but they want to wait until he shows sign of needing a shunt. They said the longer he can go and the more he can grow the better. They want him to be as strong as he possibly can be before going in for surgery. We hope and pray that when the time comes for a shunt that he will be strong and everything will go perfectly! We are so grateful for this amazing little boy, he has already changed our lives so much.