There and back

The past few days have been pretty hectic. It all started early Sunday morning when Crue spiked a fever of 103. Joe and I immediately called the after hours clinic. They told us as long as he's not vomiting and doesn't seem to be in any pain to just bring him in around 10:00 when the clinic opens. So we take him in at 10 and they did a urine test and drew some blood and both came back normal. The doc said she wanted to do a culture on them to see if they grew any bacteria, but that it would take up to 24-36 hours before they knew anything. In the mean time she wanted us to go up to Primary Children's to have him looked at. We got up there around 3 pm and were checked into a room in the infant unit. They got him hooked up to an IV and drew some more blood, and also took some spinal fluid from his shunt so they could test it to make sure there wasn't any bacteria growing. They told us that it could be anything from spinal meningitis to a UTI. They came back with the results and said that his white blood cell count was high and he had high protein in his spinal fluid, but there was no sign of infection anywhere. They wanted to keep us there for a couple days while the got the results from the culture on his urine. So after 2 and a half days, 13 pokes, a CT scan, and an MRI the result came down to a urinary tract infection. All that testing for a UTI...are you kidding me...don't get me wrong, I'm very grateful that they did everything to rule out anything major, but my poor baby boy went through a lot for just a UTI. He was a trooper though, he was such a happy guy through it all.

 This is what he thinks about this place!

And happy to be home!!

A much needed update

Wow! It's been way to long since I last updated. Things have slowed down a bit for us and its just been so nice to have some quite family time together. Crue had his first spina bifida clinic a couple weeks ago, and everything went great. Spina bifida clinic is basically one long doctors appointment where we sit in one room and a bunch of doctors circulate through and see how Crue is doing. He was seen by neurology, orthopedics, plastic surgery, physical therapy, and a dietitian. Here's a brief update of what they said.

Neurology said his shunt looks awesome and is working well.

Orthopedics came in to look at his legs and feet. They said his femur had healed up awesome and things were looking good. As for his clubbed feet they said they wanted to wait until he's about 9 to 12 month before they fix them. They said they wanted him to be about the age that he should be standing/walking to help prevent them from turning back in. Usually they do a series of cast to fix clubbed feet but they said Crue's are so clubbed that they will have to do surgery to fix them....Yay, another surgery...that's me being sarcastic by the way! Poor guy has had enough surgeries, I hate to see him go through another one.

Plastic surgery said his back looked great and all of his incisions were healing very well. There is some skin discoloration on his back from his opening but they said that is normal and will go away over time. He did have a small infection on his stomach from one of his stitches that didn't dissolve like it was supposed to, so he was put on an anti-biotic and it went away.

Physical therapy came in and said that his legs were ready for some light stretching exercises to loosen up the muscles. They also have us doing a lot of tummy time to strengthen his neck, and they have us laying him on his side so he can practice moving from his side to his back. Pretty basic stuff as of right now being that he's only 2 months old!

Dietitian said that as of right now there wasn't much that needed to be done, obviously because he is only 2 months old and only eats breast milk! They will check back as he gets closer to eating solids.

That pretty much sums it up!! He is doing great and he is such a happy little guy! We are truly blessed to have him in our lives. He is just the cutest little fart you'll ever see!