Pray for baby Crue

On Friday April 6, 2012 our lives changed forever. I was asked to come in for my 3rd ultrasound to check a few things they couldn't see at my 20 week scan. When I went in for my 20 week scan they were unable to see the back of the baby's brain and they reassured me that it was just the way he was laying. They told me everything else on the baby looked great and he was growing healthy. I then went home and told myself everything was fine and not to worry. I returned to the doctor 4 weeks later for a routine check up and everything went great. She went over the ultrasound and told me that he looked very healthy and was growing very well. She then told me to set up another ultrasound appointment to get another look at the part of his brain that they were unable to see. The ultrasound tech told me to come in the next day at 3:30. I returned the next day and waited nervously in the waiting room, telling myself that everything was fine. When I was finally called back I laid back on the table and watched as she scanned over the baby. It didn't take me long to figure out that there was something wrong. The ultrasound tech kept scanning back and forth and didn't say a word for what seemed like a life time. I finally looked at her and asked if there was something wrong. She said she was still unable to see the cerebellum (the back of the baby's brain) and that she didn't think it was because of the way he was laying. My heart dropped...I couldn't think straight, and I felt as if I was in another world. It's hard to explain the way I was feeling...it was a nightmare. I fought back the tears as she scanned over the rest of his body. She told me that there were a few other things that she was seeing but was not able to tell me a lot of information about it. She said that there was a problem with his spine and that it didn't look good, she then told me that it looked like there was a hole in his abdomen and it looked as if there was something wrong with his feet. I didn't know what to think at that point, I just kept asking questions that she said she couldn't answer for me. I felt so angry that she wouldn't tell me more than what she was. She told me that I would have to talk to my doctor about everything and that she was so sorry for the bad news. She told me that the baby could still live but the chances weren't very good. She then took me into another room and told me to wait there so she could call my doctor and let her know what was going on. That's when I completely lost it, I called Joe hysterical and told him that he needed to get to the doctors office right away, things weren't looking good. When he got there he was of course hysterical and I told him everything that was going on. After a few minutes the tech came back and told us that she couldn't get a hold of our doctor but she left a message. She also told us that she made us an appointment with a specialist for Monday afternoon in Salt Lake. She said she would have a doctor call us as soon as she got a hold of her and that we were able to go home. So after spending the longest most horrible Easter weekend we have ever had we finally made it to the specialist. They took another ultrasound and that's when we learned that our little Crue had a sever case of spina bifida. The tech then went over the rest of his little body and said that there was no hole in his abdomen and that he did in deed have a cerebellum. He said the cerebellum was hard to see because it was being pulled down by his spine and was being pressed up against the back of his skull. He then told us that our boy had a very good chance of surviving but he may never be able to walk. We were also told that he had bi lateral clubbed feet (clubbed feet are when the baby's feet are turned inward) but that could be fixed with physical therapy or surgery. We were relieved to know that he would live but devastated to hear that he may never walk. He explained to us all of the possible side effects and everything to expect when having a baby with Spina Bifida. I can't even begin to explain to you the emotion or the heartache that i felt at that moment. He told us that we would deliver the baby C section at 39 weeks and that he would go in for surgery to close the hole in his back within the first 24 hours of his life. He would then have to have surgery to have a shunt put in his brain to drain the extra fluid that builds up from the pressure the spine causes. Our lives have been forever changed and as hard and emotional as this has been, we are trying to keep our heads up and hope for the best. We pray every day and night that Crue will have the best possible out come that he can have. I don't know where I would be without the gospel and the church in my life. As hard as it is to except at times I believe that the lord has sent us this special little boy for a reason and that we are being blessed in so many ways, even if we can't see that right now. One thing that has helped us cope with this is a talk that was given by Ronald A. Rasband at general conference. Here's a link if would like to read it. It was an amazing and uplifting talk. http://www.lds.org/general-conference/2012/04/special-lessons?lang=eng We just want to thank all of our family and friends for all the love and support. We are truly grateful for everything that everyone has done for us. All we ask is that you keep praying for our sweet baby boy.